Archie is 2 years old from Newcastle. He has been diagnosed with Acute Flaccid Myelitis and Anterior Horn cell disease. Archie spent over 100 days in the Intensive Care Unit at John Hunter Hospital since Nov 2015, and has been home approximately 5 weeks.
AFM is a condition that affects the nervous system, specifically the spinal cord, which can result from a variety of causes including viral infections. This disease has only been seen twice before Archie’s diagnosis and his is the most severe case seen. The disease has caused paralysis in Archie’s right arm, both legs and his chest. Archie was ventilated since his admission in November and has had to undergo a tracheostomy. There is no currently no cure for his condition and therefore Dr’s are relying on information from around the world through other cases to work out a treatment plan.
Anterior horn disease is a group of diseases that affect the anterior horn cells which make up part of the spinal cord.
With a long road ahead of him, Archie has daily therapy sessions and is improving every day. With both diseases being so rare it is unclear how long Archie’s full recovery will take, but it is expected to take months/years. Archie and his family will need to move to a wheelchair accessible home in the coming weeks.
Mum has become a full time carer, having to give up her full time job so this has also placed a financial burden on this family. Please help us make this family smile. If you would like to make a donation, please send an email to firstname.lastname@example.org with “Archie’s fight” in the subject heading.
*Grocery/westfield and other store vouchers
*Pampering session/ beauty treatments
*Books/puzzles/soft toys/age appropriate toys
*Clothes/long loose socks/pjs
*Fireman Sam themed products
*Sports/rugby league themed paraphernalia